Finally I’m That Girl

I’m going to tell you a bit about what is going on right now, in present time, before I continue to recap my story. Even with this news, I am going to continue to tell the story chronologically as it happened. I’m currently about four months behind. If you need a refresher on where we are, please reference the Starting Line page. I hope that in sharing my story in full it will help someone someday.

As you may have seen, I had surgery over the holidays. It took a little while, but just a little over a week later, I received a phone call from the surgeon with the pathology results. And nearly a week later, I had a follow up appointment with her to check my healing and go over the results in detail. I needed to hear it from her in person before I really shared it in this way, which sounds crazy I am sure.

Long story short, I am now considered “cancer free”!

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Bookshelf – Radical Remission So Far

One of the book’s I’ve been trying to get through is Radical Remission: Surviving Cancer Against All Odds by Dr. Kelly Turner. While I would like to think the odds are, well, “ever in my favor” to borrow from another good read, I have really enjoyed looking beyond the chemotherapy and radiation to survivor’s stories of radical remission. Dr. Turner sort of defines a Radical Remission as when someone heals cancer against all odds.

This has been another read that I certainly have to be in the right frame of mind to read through. I purchased the book electronically using a gift card I was gifted by a friend, so I am able to read it occasionally when I have a few minutes on my phone or the iPad depending where and when that may happen. I’m still getting into accepting the electronic book thing! Dr. Turner provides 9 key factors that she found common among nearly all the Radical Remission survivors she studied.

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All Puffed Up

So here we are, day two in the hospital, after a sleepless night and quite a day that led us here. That Guy was with me, my dad still hadn’t seen me so he came up at some point that morning. The doctors came around doing rounds. When I awoke, my arms and hands were even puffier than before! It seemed like this day brought even more questions than answers, which was very frustrating.

I was still very out of it. Some might say I always am, so just imagine how I was even worse. I was not allowed to eat solid food we found out and was not allowed to eat anything until after my IR check that day. Someone had allowed me to have dinner the night before, whoops! And that kind of sums up how everything went that day.

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Celebrate Good Times

There is nothing like some time out with girlfriends. Nothing. And I am lucky enough to have some really great girlfriends who live close enough and were able find time to meet to spend a few hours Christmas shopping and having dinner with me. The excuse was to celebrate the end of chemotherapy and my belated birthday. It was seriously the most excitement I have had in a year. You know, a year ago when nearly the same group spent an entire day together. I might make them do it all again after radiation, if they are willing! Yes, let’s pencil that in, ladies.

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Wrapping up with AC

So I had finally gotten to the last cycle of this first chemotherapy duo. I was still having these awful moments where I felt like someone was choking me. My chest was still turning purple. I was dizzy “more often out of nowhere” (a direct quote from the notebook I take to appointments). Another direct quote from my notebook, “When do we start worrying about this pressure in my neck?”

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Third Time Was Not Such a Charm

Immediately prior to the third cycle, I started to have some new strange symptoms or side effects. For one, I was gaining weight, but the chemotherapy protocol I was on included a lot of steroids and fluids, plus I wasn’t hugely active. It wasn’t out of the question that this would be happening. Additionally, the chemotherapy caused photosensitivity so when my chest and face would appear red and blotchy, I reported it to the doctor, but there were explanations for that as well. The pressure in my neck was concerning, but they didn’t know what it could be. Over that weekend, just helping my daughter get dressed made me breathless and a purpley red coloring. Putting That Baby in the car carrier was extremely difficult since I was bending over even if I was kneeling. My puffy achey eyes were attributed to the chemotherapy. I was told that eye drops would help that, as would using my reading glasses more frequently. What concerned the doctor I saw that day the most was the sharp pain I had in my back/ribs area when I took a deep breath. There were reasonable explanations, playing with my daughter and her friend on a playground or just the Neulasta shot or a normal tweaked muscle. With a history of pulmonary embolisms, he felt that was the most concerning to him. Before I could be cleared for chemotherapy, I had to have a CT scan to check for pulmonary embolisms. That Guy had accompanied me to the doctor appointment, but he had to get to work. My chemo buddy friend for the day was able to shuffle her team to extend childcare and stay with me for the long haul. I’m telling you, it truly takes a village!

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Ring That Bell!

DSC_0495So I just can’t wait to catch up to the present day to write this post! I received so much support on the Facebook page about this that I just had to do this now!

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The First Two Weeks Between

My particular experience for this chemotherapy protocol gave me two weeks “off” to rest up and have somewhat of a normal life in between treatment weeks. That is not what they are intended for, but after the first treatment, I was feeling fairly normal for these weeks after the first week. That would change as the summer went on. That is not to say I didn’t spend a significant amount of time during these weeks at the doctor’s office or dealing with cancer related things in addition to having a newborn. It just means, I didn’t spend them feeling entirely terrible all day long everyday and laying around the house unable to do much of anything trying to keep my food down.

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Happy Thanksgiving!

This has been a hard year for our little family. I really feel like saying so does a disservice to That Baby’s birth and I truly hate that we all feel that way. Some day she will understand why 2014 is not going to be a year that goes down as one of the best for this family. She was truly the best thing that happened to us this year. So for that reason alone, it is important to focus on all that I have to be thankful for this year.

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Box of Sunshine!

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That Guy is All About Our Girls

So, I do not think I would be stretching the truth to say that I have no idea how I would have gotten this far without the amazing support system I have. That Guy has taken on even more of the parental and household duties in many ways, even though I am home with the girls during this time. That Guy has been with me at as many appointments as he is able, while still working. And somehow he does it all without really ever letting me feel like I am a downer to what should be a really amazing time in both of our lives, having just welcomed our second baby into our family. That Guy has a unique perspective to this path we are on. Lucky for you, he is open to contributing to the blog, as well.

So tell us, what should he share?

If there is something you would like to read, that we haven’t thought of, please let us know!