De-Porting

Don’t worry, we are nearing the end of the story of my SVC syndrome from blood clots and the related hospital stay! If you will, come back to early fall when I was in the hospital trying desperately to get home to my girls again (you can see the previous posts here under Detour – SVC Syndrome).

We are now at the seventh day of my stay and I awoke anxious, ready to have my port taken out. During the morning, the doctors came around and I found out that if I had the procedure done that day, I could go home the next day (spoiler, doctors are not always right). If Interventional Radiology couldn’t get it done that day, I would be scheduled for the next day and go home the following. This had me concerned since we were headed into a weekend and it seems pretty obvious that much of the hospital would be operating on a limited type staffing through a weekend and, rightfully so, working on emergency patients first. With how quickly they had been able to get my care started when I arrived the week prior on a weekend, I don’t have a problem with that. Once the port was removed, they would need to get my Heparin (short term blood thinner I had through IV) numbers back to level, then switch me over to Lovenox (more long term blood thinner injected). My activity was to be limited once I was home. The original plan was to take it easy for 10 days with lots of rest and only going to doctor appointments. I was not to be left alone with my girls or drive anyone anywhere for the same time, until I was seen.

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Wacky Wednesday – Nip One, Purl Two

Breast Cancer isn’t really very funny. Parenthood, however, I will admit can be really really funny. And I do try to laugh at myself as often as possible. When you combine That Girl, That Guy, and My Girls, you get a pretty Wacky life. When I was a child, probably when I was learning to read, one of my favorite books was “Wacky Wednesday” by Dr. Seuss. Since we constantly talk about how wacky my oldest is, some Wednesdays I will be sharing what I think are pretty Wacky stories, quotes, and silliness from our lives. Enjoy!

I have debated sharing this story, because I should be mortified. At this point though, I’m fairly certain the number of people who have seen “my girls” (not my daughters, the other ones) is in a range that requires a comma to keep count. Basically, I am not mortified by it. Embarrassed I’m so oblivious, but not embarrassed by what others saw. And if you are related to me (cough, dad, cough) you might want to just skip this one. So here it goes…

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So Many Questions

This middle part of the week, as I continued to deflate, there were still a lot of questions. I was still stuck in bed. I was dizzy on and off. The left side of my face felt weird, including my eye, which is nerve wracking of course. No one had come to a consensus of whether I should be moving my legs around while I was in bed to prevent clots or if that would dislodge the clots I had.

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Finally I’m That Girl

I’m going to tell you a bit about what is going on right now, in present time, before I continue to recap my story. Even with this news, I am going to continue to tell the story chronologically as it happened. I’m currently about four months behind. If you need a refresher on where we are, please reference the Starting Line page. I hope that in sharing my story in full it will help someone someday.

As you may have seen, I had surgery over the holidays. It took a little while, but just a little over a week later, I received a phone call from the surgeon with the pathology results. And nearly a week later, I had a follow up appointment with her to check my healing and go over the results in detail. I needed to hear it from her in person before I really shared it in this way, which sounds crazy I am sure.

Long story short, I am now considered “cancer free”!

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All Puffed Up

So here we are, day two in the hospital, after a sleepless night and quite a day that led us here. That Guy was with me, my dad still hadn’t seen me so he came up at some point that morning. The doctors came around doing rounds. When I awoke, my arms and hands were even puffier than before! It seemed like this day brought even more questions than answers, which was very frustrating.

I was still very out of it. Some might say I always am, so just imagine how I was even worse. I was not allowed to eat solid food we found out and was not allowed to eat anything until after my IR check that day. Someone had allowed me to have dinner the night before, whoops! And that kind of sums up how everything went that day.

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Gifts to Start a Resolution

In addition to the nail polishes I mentioned here, I was recently gifted a few kitchen appliances to help me in my quest to resist the tempting sweets I love in the traditional processed form, or whatever you want to call it. Basically, I need to stop eating or at least limit sugary dairy treats. Chai Lattes and Mint Chocolate Chip Gelato got me through some tough nauseous feeling terrible days, but if I am going to have them even sparingly in the future, I need to find another way to make them and find alternatives to fix my cravings. We also are cooking at home more and more for health, money, and so many other reasons. We are doing so in a way that makes life easier, like having leftovers, so having more storage options was on my list of wishes! And for good measure, a few yoga accessories were on my list, as well. While I hesitate to call these efforts resolutions, instead of permanent ongoing lifestyle changes, well, I kind of like the revolution resolution connection! [Read more…]

Happy New Year, Butter-cup!

So back when we were younger, a friend said to me, “Drink Up, Buttercup!” somewhere in the midst of twenty-first birthday festivities. Turns out, that phrase lends itself to many situations. I have often thought to myself over the past year, “Suck it up, Buttercup”. I have told That Little Girl, “Let’s Pick Up, Buttercup!” So whatever your New Year’s plans, I hope you have a safe and happy night ahead of you!

So, Buttercups, I was lucky enough to receive three new Butter Nail Lacquers between Christmas gifts and gift cards. The other three I had bought and mentioned previously, well, I couldn’t quite hold out long enough for them to make it into my stocking. Here are the three newbies. I am definitely expanding beyond neutrals!

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The lacquers shown are (from left to right) The Black Knight, Gobsmacked, and Slapper.

Pictured with my Erin Condren Jester theme Life Planner behind them. [Read more…]

2014 in review

The WordPress.com stats helper monkeys prepared a 2014 annual report for this blog.

Here’s an excerpt:

The concert hall at the Sydney Opera House holds 2,700 people. This blog was viewed about 9,700 times in 2014. If it were a concert at Sydney Opera House, it would take about 4 sold-out performances for that many people to see it.

Click here to see the complete report.

Error In My Favor

Once I was back in a little private triage room, which in reality was a hallway where there was a little staff room if I remember correctly, I remember feeling really puffy. I started taking off my rings. Then my necklace. Then my bracelet. And then my wig. The gentleman who had gotten me the wheelchair was seriously the most calm person ever considering the circumstances. He got my mom a little bag to put everything in for me (Catch up with my trip to the ER starting here).

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Mama Needs a New Bag

With my surgery coming up, there are a few lifestyle type changes I plan to make. Part of the surgery includes removal of lymph nodes.  As a whole, it puts me at risk for lymphedema as a side effect. I am pretty certain no one wants lymphedema. At my pre-surgery appointment, they took measurements of the fluid in my body again. The first measurement was when I was still pregnant when we met with the surgeon before we even knew the pathology of my cancer. After surgery, I will be measured again from what I understand and Physical Therapy has taken physical circumference measurements of my arms.

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